TY - JOUR
T1 - Stroke Investigative Research and Education Network
T2 - Community Engagement and Outreach Within Phenomics Core
AU - Jenkins, Carolyn
AU - Arulogun, Oyedunni Sola
AU - Singh, Arti
AU - Mande, Aliyu T.
AU - Ajayi, Eric
AU - Benedict, Calys Tagoe
AU - Ovbiagele, Bruce
AU - Lackland, Daniel T.
AU - Sarfo, Fred Stephen
AU - Akinyemi, Rufus
AU - Akpalu, Albert
AU - Obiako, Reginald
AU - Melikam, Enzinne Sylvia
AU - Laryea, Ruth
AU - Shidali, Vincent
AU - Sagoe, Kwamena
AU - Ibinaiye, Philip
AU - Fakunle, Adekunie Gregory
AU - Owolabi, Lukman F.
AU - Owolabi, Mayowa O.
N1 - Publisher Copyright:
© 2016, Society for Public Health Education.
PY - 2015
Y1 - 2015
N2 - Stroke is the leading cause of neurological hospital admissions in sub-Saharan Africa (SSA) and the second leading cause of death globally. The Stroke Investigative Research and Education Network seeks to comprehensively characterize the genomic, sociocultural, economic, and behavioral risk factors for stroke and to build effective teams for research to address and decrease the burden of stroke and other noncommunicable diseases in SSA. One of the first steps to address this goal is to effectively engage the communities that suffer the high burden of disease. The purpose of this article is to describe plans to elucidate information about knowledge, attitudes, beliefs, and practices about stroke and genomics from patients, caregivers, and local leaders, to recruit participation in research activities and dissemination of ongoing results, as well as to facilitate research uptake and impact within the broader communities of scientists, health professionals, policy makers, and others. We describe the (a) study sites and their communities; (b) plans for community advisory boards, focus groups, and surveys; (c) methods for data management in REDCap database; (d) analyses of qualitative data; (e) evaluation of community and public engagement across multiple sites and research teams in SSA and the United States; (f) use of RE-AIM for presentation of evaluation data; and (g) community indicators of success. This is the first of its kind public outreach engagement initiative to evaluate stroke and genomics in SSA, and has implications as a model for assessment in other high–stroke risk populations.
AB - Stroke is the leading cause of neurological hospital admissions in sub-Saharan Africa (SSA) and the second leading cause of death globally. The Stroke Investigative Research and Education Network seeks to comprehensively characterize the genomic, sociocultural, economic, and behavioral risk factors for stroke and to build effective teams for research to address and decrease the burden of stroke and other noncommunicable diseases in SSA. One of the first steps to address this goal is to effectively engage the communities that suffer the high burden of disease. The purpose of this article is to describe plans to elucidate information about knowledge, attitudes, beliefs, and practices about stroke and genomics from patients, caregivers, and local leaders, to recruit participation in research activities and dissemination of ongoing results, as well as to facilitate research uptake and impact within the broader communities of scientists, health professionals, policy makers, and others. We describe the (a) study sites and their communities; (b) plans for community advisory boards, focus groups, and surveys; (c) methods for data management in REDCap database; (d) analyses of qualitative data; (e) evaluation of community and public engagement across multiple sites and research teams in SSA and the United States; (f) use of RE-AIM for presentation of evaluation data; and (g) community indicators of success. This is the first of its kind public outreach engagement initiative to evaluate stroke and genomics in SSA, and has implications as a model for assessment in other high–stroke risk populations.
KW - REDCap database
KW - SSA
KW - community advisory boards
KW - community engagement
KW - focus groups
KW - genomics
KW - stroke
KW - sub-Saharan Africa
UR - http://www.scopus.com/inward/record.url?scp=84962148726&partnerID=8YFLogxK
U2 - 10.1177/1090198116634082
DO - 10.1177/1090198116634082
M3 - Article
C2 - 27037152
AN - SCOPUS:84962148726
SN - 1090-1981
VL - 43
SP - 82S-92S
JO - Health Education and Behavior
JF - Health Education and Behavior
ER -