TY - JOUR
T1 - Perceived Supportive Care Needs of Adolescents With Chronic Hepatitis B in a Resource-limited Setting
AU - Kolbila, Lilian
AU - Adjei, Charles Ampong
AU - Kyei, Josephine M.
AU - Agyemang-Prempeh, Charles
AU - Fosu, Peter Kwabena
N1 - Publisher Copyright:
© The Author(s) 2022.
PY - 2022
Y1 - 2022
N2 - In Ghana, adolescents are disproportionately affected by hepatitis B. However, studies into adolescents’ supportive care needs are lacking. The purpose of this exploratory qualitative study was to explore the supportive care needs of 18 adolescents with chronic hepatitis B who were receiving care at a tertiary hospital in Ghana. The data were processed using QSR Nvivo version 11.0 and analyzed using the Braun and Clarke procedure for thematic data analysis. According to the findings, adolescents with chronic hepatitis B have unmet supportive care needs ranging from information to financial need, psychological support, and social support. Explicitly, participants reportedly had a dilemma as to whether to keep or terminate their pregnancy to prevent transmission of the virus to their newborns. Physicians and nurses were perceived to be preoccupied with medication prescription and laboratory request writing rather than giving pretest and posttest counseling following diagnosis. This study highlights the need to have a tailor-made liver care for adolescents. Pretest and posttest counseling for adolescents with hepatitis B are also required.
AB - In Ghana, adolescents are disproportionately affected by hepatitis B. However, studies into adolescents’ supportive care needs are lacking. The purpose of this exploratory qualitative study was to explore the supportive care needs of 18 adolescents with chronic hepatitis B who were receiving care at a tertiary hospital in Ghana. The data were processed using QSR Nvivo version 11.0 and analyzed using the Braun and Clarke procedure for thematic data analysis. According to the findings, adolescents with chronic hepatitis B have unmet supportive care needs ranging from information to financial need, psychological support, and social support. Explicitly, participants reportedly had a dilemma as to whether to keep or terminate their pregnancy to prevent transmission of the virus to their newborns. Physicians and nurses were perceived to be preoccupied with medication prescription and laboratory request writing rather than giving pretest and posttest counseling following diagnosis. This study highlights the need to have a tailor-made liver care for adolescents. Pretest and posttest counseling for adolescents with hepatitis B are also required.
KW - Ghana
KW - adolescents
KW - hepatitis B
KW - perceived supportive care need
UR - http://www.scopus.com/inward/record.url?scp=85131600087&partnerID=8YFLogxK
U2 - 10.1177/23743735221106596
DO - 10.1177/23743735221106596
M3 - Article
AN - SCOPUS:85131600087
SN - 2374-3735
VL - 9
JO - Journal of Patient Experience
JF - Journal of Patient Experience
ER -