Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015

J. De Vries; K. Littler; A. Matimba; S. Mccurdy; O. Ouwe Missi Oukem-Boyer; J. Seeley; P. Tindana

doi:10.1017/gheg.2016.5

Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015

J. De Vries
, K. Littler
, A. Matimba
, S. Mccurdy
, O. Ouwe Missi Oukem-Boyer
, J. Seeley
, P. Tindana

University of Cape Town
Wellcome Trust
University of Zimbabwe
University of Texas Health Science Center at Houston
Centre de Recherche Medicale et Sanitaire Niamey
Cameroon Bioethics Initiative (CAMBIN)
Medical Research Council
London School of Hygiene & Tropical Medicine
University for Development Studies Ghana

Research output: Contribution to journal › Article › peer-review

7 Citations (Scopus)

Abstract

A report on the Second H3Africa Ethics Consultation Meeting, which was held in Livingstone, Zambia on 11 May 2015. The meeting demonstrated considerable evolution by African Research Ethics Committees on thinking about broad consent as a consent option for genomics research and biobanking. The meeting concluded with a call for broader engagement with policy makers across the continent in order to help these recognise the need for guidance and regulation where these do not exist and to explore harmonisation where appropriate and possible.

Original language	English
Article number	e13
Journal	Global Health, Epidemiology and Genomics
Volume	1
DOIs	https://doi.org/10.1017/gheg.2016.5
Publication status	Published - 2016
Externally published	Yes

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

Africa
Ethics Consultation Meeting
H3Africa
broad consent
genomics research

Access to Document

10.1017/gheg.2016.5

Cite this

@article{efa726996e73454cb35d3183a660d5b7,

title = "Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015",

abstract = "A report on the Second H3Africa Ethics Consultation Meeting, which was held in Livingstone, Zambia on 11 May 2015. The meeting demonstrated considerable evolution by African Research Ethics Committees on thinking about broad consent as a consent option for genomics research and biobanking. The meeting concluded with a call for broader engagement with policy makers across the continent in order to help these recognise the need for guidance and regulation where these do not exist and to explore harmonisation where appropriate and possible.",

keywords = "Africa, Ethics Consultation Meeting, H3Africa, broad consent, genomics research",

author = "\{De Vries\}, J. and K. Littler and A. Matimba and S. Mccurdy and \{Ouwe Missi Oukem-Boyer\}, O. and J. Seeley and P. Tindana",

note = "Publisher Copyright: {\textcopyright} The Author(s) 2016.",

year = "2016",

doi = "10.1017/gheg.2016.5",

language = "English",

volume = "1",

journal = "Global Health, Epidemiology and Genomics",

issn = "2054-4200",

publisher = "John Wiley and Sons Ltd",

}

TY - JOUR

T1 - Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015

AU - De Vries, J.

AU - Littler, K.

AU - Matimba, A.

AU - Mccurdy, S.

AU - Ouwe Missi Oukem-Boyer, O.

AU - Seeley, J.

AU - Tindana, P.

N1 - Publisher Copyright: © The Author(s) 2016.

PY - 2016

Y1 - 2016

N2 - A report on the Second H3Africa Ethics Consultation Meeting, which was held in Livingstone, Zambia on 11 May 2015. The meeting demonstrated considerable evolution by African Research Ethics Committees on thinking about broad consent as a consent option for genomics research and biobanking. The meeting concluded with a call for broader engagement with policy makers across the continent in order to help these recognise the need for guidance and regulation where these do not exist and to explore harmonisation where appropriate and possible.

AB - A report on the Second H3Africa Ethics Consultation Meeting, which was held in Livingstone, Zambia on 11 May 2015. The meeting demonstrated considerable evolution by African Research Ethics Committees on thinking about broad consent as a consent option for genomics research and biobanking. The meeting concluded with a call for broader engagement with policy makers across the continent in order to help these recognise the need for guidance and regulation where these do not exist and to explore harmonisation where appropriate and possible.

KW - Africa

KW - Ethics Consultation Meeting

KW - H3Africa

KW - broad consent

KW - genomics research

UR - https://www.scopus.com/pages/publications/85011288855

U2 - 10.1017/gheg.2016.5

DO - 10.1017/gheg.2016.5

M3 - Article

AN - SCOPUS:85011288855

SN - 2054-4200

VL - 1

JO - Global Health, Epidemiology and Genomics

JF - Global Health, Epidemiology and Genomics

M1 - e13

ER -

Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015

Abstract

UN SDGs

Keywords

Access to Document

Other files and links

Fingerprint

Cite this