Challenges of Caring for Functionally Single Ventricle Patients in Africa

Frank Edwin; Mohamed Adel Elgamal; Abid Dorra; Darshan Reddy; Kow Entsua-Mensah; Innocent Adzamli; Nana Akyaa Yao; Mark Tettey; Martin Tamatey; Susan Vosloo; Rob Kinsley

doi:10.1177/2150135118817769

Challenges of Caring for Functionally Single Ventricle Patients in Africa

Frank Edwin
, Mohamed Adel Elgamal
, Abid Dorra
, Darshan Reddy
, Kow Entsua-Mensah
, Innocent Adzamli
, Nana Akyaa Yao
, Mark Tettey
, Martin Tamatey
, Susan Vosloo
, Rob Kinsley

Department of Surgery

University of Health and Allied Sciences
Korle Bu Teaching Hospital
Mansoura University Children’s Hospital
Hedi Chaker Hospital
University of KwaZulu-Natal
Lenmed Ethekwini Hospital and Heart Centre
Christiaan Barnard Memorial Hospital

Research output: Contribution to journal › Review article › peer-review

8 Citations (Scopus)

Abstract

Surgical palliation has remarkably improved survival of functionally single ventricle (FSV) patients born in developed nations but such outcomes have not occurred in Africa. The poor care coverage for FSV patients in Africa exists within the larger sphere of deficient health care for children born with congenital heart defects (CHDs) in Africa generally. This review takes the position that to improve health-care coverage for CHD patients on the continent, political priority is paramount. This can be attained with cohesive leadership for the CHD agenda, a guiding institution, and the mobilization of civil society to drive advocacy at national and international levels.

Original language	English
Pages (from-to)	338-342
Number of pages	5
Journal	World Journal for Pediatric and Congenital Heart Surgery
Volume	10
Issue number	3
DOIs	https://doi.org/10.1177/2150135118817769
Publication status	Published - 1 May 2019

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

CHD
congenital heart disease (CHD)
cost analysis
functionally univentricular heart
health policy (includes government regulation)
univentricular heart

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10.1177/2150135118817769

Cite this

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title = "Challenges of Caring for Functionally Single Ventricle Patients in Africa",

abstract = "Surgical palliation has remarkably improved survival of functionally single ventricle (FSV) patients born in developed nations but such outcomes have not occurred in Africa. The poor care coverage for FSV patients in Africa exists within the larger sphere of deficient health care for children born with congenital heart defects (CHDs) in Africa generally. This review takes the position that to improve health-care coverage for CHD patients on the continent, political priority is paramount. This can be attained with cohesive leadership for the CHD agenda, a guiding institution, and the mobilization of civil society to drive advocacy at national and international levels.",

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T1 - Challenges of Caring for Functionally Single Ventricle Patients in Africa

AU - Edwin, Frank

AU - Elgamal, Mohamed Adel

AU - Dorra, Abid

AU - Reddy, Darshan

AU - Entsua-Mensah, Kow

AU - Adzamli, Innocent

AU - Yao, Nana Akyaa

AU - Tettey, Mark

AU - Tamatey, Martin

AU - Vosloo, Susan

AU - Kinsley, Rob

N1 - Publisher Copyright: © The Author(s) 2018.

PY - 2019/5/1

Y1 - 2019/5/1

N2 - Surgical palliation has remarkably improved survival of functionally single ventricle (FSV) patients born in developed nations but such outcomes have not occurred in Africa. The poor care coverage for FSV patients in Africa exists within the larger sphere of deficient health care for children born with congenital heart defects (CHDs) in Africa generally. This review takes the position that to improve health-care coverage for CHD patients on the continent, political priority is paramount. This can be attained with cohesive leadership for the CHD agenda, a guiding institution, and the mobilization of civil society to drive advocacy at national and international levels.

AB - Surgical palliation has remarkably improved survival of functionally single ventricle (FSV) patients born in developed nations but such outcomes have not occurred in Africa. The poor care coverage for FSV patients in Africa exists within the larger sphere of deficient health care for children born with congenital heart defects (CHDs) in Africa generally. This review takes the position that to improve health-care coverage for CHD patients on the continent, political priority is paramount. This can be attained with cohesive leadership for the CHD agenda, a guiding institution, and the mobilization of civil society to drive advocacy at national and international levels.

KW - CHD

KW - congenital heart disease (CHD)

KW - cost analysis

KW - functionally univentricular heart

KW - health policy (includes government regulation)

KW - univentricular heart

UR - https://www.scopus.com/pages/publications/85075749427

U2 - 10.1177/2150135118817769

DO - 10.1177/2150135118817769

M3 - Review article

C2 - 31084309

AN - SCOPUS:85075749427

SN - 2150-1351

VL - 10

SP - 338

EP - 342

JO - World Journal for Pediatric and Congenital Heart Surgery

JF - World Journal for Pediatric and Congenital Heart Surgery

IS - 3

ER -

Challenges of Caring for Functionally Single Ventricle Patients in Africa

Abstract

UN SDGs

Keywords

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