Capacity and Choice in Complex Neurodevelopmental Disorders Ethical Considerations Focussing on Capacity and the Right to Choose

Research output: Chapter in Book/Report/Conference proceedingChapterpeer-review

Abstract

This chapter critically examines the role of the Interprofessional or Multidisciplinary Team (MDT) in supporting individuals with severe learning disabilities and autism spectrum disorder (ASD), with a particular focus on social justice considering the complexities of promoting autonomy and person-centred care. Through the analysis of a contemporary case, it highlights how fragmented MDT coordination, resource constraints, and delayed intervention can compromise the right to choose and impact the emotional and physical well-being of individuals and their families. Guided by the Mental Capacity Act (2005), the chapter explores the ethical and legal responsibilities of MDTs in collaborative planning, particularly during periods of family crisis. It reflects on the challenges faced when balancing best interest decisions with respecting the individual's autonomy, compounded by carer strain and fluctuating support systems. The discussion calls for a more anticipatory, integrated approach within interprofessional practice to ensure consistent, holistic, and legally compliant care.

Original languageEnglish
Title of host publicationInterprofessional Ethics Across the Life Course in Health and Social Care
Subtitle of host publicationA Scenario-Based Approach
PublisherTaylor and Francis
Pages125-134
Number of pages10
ISBN (Electronic)9781040451861
ISBN (Print)9781041129127
DOIs
Publication statusPublished - 1 Jan 2025
Externally publishedYes

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