TY - CHAP
T1 - Capacity and Choice in Complex Neurodevelopmental Disorders Ethical Considerations Focussing on Capacity and the Right to Choose
AU - Barrington-Stoute, Roxanne
AU - Boucas, Sofia Barbosa
AU - Doe-Asinyo, Rosemary Xorlanyo
AU - Petrucci, Rosa Saito
AU - Yip, Sin Hang John
AU - Sicat, Sherwyn
N1 - Publisher Copyright:
© 2026 selection and editorial matter, Ann Gallagher, Nigel Davies, Nicky Mathastein-Bowen and Sherwyn Sicat; individual chapters, the contributors.
PY - 2025/1/1
Y1 - 2025/1/1
N2 - This chapter critically examines the role of the Interprofessional or Multidisciplinary Team (MDT) in supporting individuals with severe learning disabilities and autism spectrum disorder (ASD), with a particular focus on social justice considering the complexities of promoting autonomy and person-centred care. Through the analysis of a contemporary case, it highlights how fragmented MDT coordination, resource constraints, and delayed intervention can compromise the right to choose and impact the emotional and physical well-being of individuals and their families. Guided by the Mental Capacity Act (2005), the chapter explores the ethical and legal responsibilities of MDTs in collaborative planning, particularly during periods of family crisis. It reflects on the challenges faced when balancing best interest decisions with respecting the individual's autonomy, compounded by carer strain and fluctuating support systems. The discussion calls for a more anticipatory, integrated approach within interprofessional practice to ensure consistent, holistic, and legally compliant care.
AB - This chapter critically examines the role of the Interprofessional or Multidisciplinary Team (MDT) in supporting individuals with severe learning disabilities and autism spectrum disorder (ASD), with a particular focus on social justice considering the complexities of promoting autonomy and person-centred care. Through the analysis of a contemporary case, it highlights how fragmented MDT coordination, resource constraints, and delayed intervention can compromise the right to choose and impact the emotional and physical well-being of individuals and their families. Guided by the Mental Capacity Act (2005), the chapter explores the ethical and legal responsibilities of MDTs in collaborative planning, particularly during periods of family crisis. It reflects on the challenges faced when balancing best interest decisions with respecting the individual's autonomy, compounded by carer strain and fluctuating support systems. The discussion calls for a more anticipatory, integrated approach within interprofessional practice to ensure consistent, holistic, and legally compliant care.
UR - https://www.scopus.com/pages/publications/105023732984
U2 - 10.4324/9781003667216-11
DO - 10.4324/9781003667216-11
M3 - Chapter
AN - SCOPUS:105023732984
SN - 9781041129127
SP - 125
EP - 134
BT - Interprofessional Ethics Across the Life Course in Health and Social Care
PB - Taylor and Francis
ER -