Addressing ethical issues in H3Africa research – the views of research ethics committee members

Jantina de Vries; Akin Abayomi; Katherine Littler; Ebony Madden; Sheryl McCurdy; Odile Ouwe Missi Oukem-Boyer; Janet Seeley; Ciara Staunton; Godfrey Tangwa; Paulina Tindana; Jennifer Troyer

doi:10.1186/s11568-015-0006-6

Addressing ethical issues in H3Africa research – the views of research ethics committee members

Jantina de Vries
, Akin Abayomi
, Katherine Littler
, Ebony Madden
, Sheryl McCurdy
, Odile Ouwe Missi Oukem-Boyer
, Janet Seeley
, Ciara Staunton
, Godfrey Tangwa
, Paulina Tindana
, Jennifer Troyer

University of Cape Town
Stellenbosch University & National Health Laboratory Service
Wellcome Trust
National Institute of Health
University of Texas Health Science Center at Houston
Centre de Recherche Medicale et Sanitaire Niamey
Cameroon Bioethics Initiative (CAMBIN)
Medical Research Council
Stellenbosch University
Université de Yaoundé I
University for Development Studies Ghana
National Human Genome Research Institute (NHGRI)

Research output: Contribution to journal › Article › peer-review

47 Citations (Scopus)

Abstract

In June 2014, the H3Africa Working Group on Ethics organised a workshop with members of over 40 research ethics committees from across Africa to discuss the ethical challenges raised in H3Africa research, and to receive input on the proposed H3Africa governance framework. Prominent amongst a myriad of ethical issues raised by meeting participants were concerns over consent for future use of samples and data, the role of community engagement in large international collaborative projects, and particular features of the governance of sample sharing. This report describes these concerns in detail and will be informative to researchers wishing to conduct genomic research on diseases pertinent to the African research context.

Original language	English
Article number	1
Journal	HUGO Journal
Volume	9
Issue number	1
DOIs	https://doi.org/10.1186/s11568-015-0006-6
Publication status	Published - 31 Jan 2015
Externally published	Yes

Keywords

Africa
Biobanking
Broad consent
Community engagement
Ethics
Genomics
H3Africa
Sample sharing

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10.1186/s11568-015-0006-6

Cite this

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AU - Ouwe Missi Oukem-Boyer, Odile

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KW - Sample sharing

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Addressing ethical issues in H3Africa research – the views of research ethics committee members

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Keywords

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